Helpful Resources

Resources for all things caregiving

Facts about dementia, resources and tips for caregivers

Search for a care manager professional (Geriatric Care Manager)

Search for local Area Agency on Aging that provides information, referral and support

Access to 24/7 Help Desk and other family caregiver resources

Help for advanced, end-of-life care planning

The Rosalynn Carter Institute for Caregivers (RCI) promotes the health, strength, and resilience of all caregivers at every stage of their journey. 

We work to change the future for women and Alzheimer’s by focusing on the four pillars: research,   education, advocacy and clinic care. 

The Alliance conducts research on policy analysis, develops national best-practiced programs, and works to increase pubblic awareness of family caregiving issues. 

Find health and drug plans, providers and ratings

State Health Insurance Assistance Program – One on One counseling and assistance navigating Medicare

How to apply for coverage, outreach materials and more

Search for local elder law attorney

The largest nonprofit organization representing hospice & palliative care programs and professionals in the U.S.

The U.S. Government’s lead agency on aging and Alzheimer’s disease and related dementias research. Also provides Caregiving worksheets

Not-for-profit assisting older adults and families with the physical and emotional demands of downsizing, relocating, or modifying their homes

Caregiver Support program for Veterans

Books we love

Caring for Aging Parents

When Your Aging Parent Needs Help: A Geriatrician’s Step-by-Step Guide to Memory Loss, Resistance, Safety Worries & More
—Leslie Kernisan, MD, MPH  

Successfully Navigating Your Parents’ Senior Years Critical Information to Maximize Their Independence and Make Sure They Get the Care They Need
—Star Bradbury

Dementia

The Problem of Alzheimer’s: How Science, Culture and Politics Turned a Rare Disease into a Crisis and What We Can Do About It
—Dr Jason Karlawish

Dementia With Dignity: Living Well with Alzheimer’s or Dementia Using the DAWN Method
—Judy Cornish

Diagnosis Dementia: Your Guide for Eldercare Planning and Crisis Management
—Nicole J Smith

Memoirs

Can’t We Talk About Something More Pleasant?: A Memoir
—Roz Chast

My Parent’s Keeper : The Guilt, Grief, Guesswork and Unexpected Gifts of Caregiving
—Jody Gastfriend

Alzheimer’s Daughter a memoir
—Jean Lee

Support for the Caregiver While You are Caring

AARP Meditations for Caregivers: Practical, Emotional, and Spiritual Support for You and Your Family
—Barry Jacobs, PsyD and Julia Mayer, PsyD

Take Back Your Life: A Caregiver’s Guide to Finding Freedom in the Midst of Overwhelm
—Loren Gelberg-Goff, LCSW

Take Your Oxygen First: Protecting Your Health and Happiness While Caring for a Loved One with Memory Loss
—Leeza Gibbons

Caring for Our Parents: Inspiring Stories of Families Seeking New Solutions to America’s Most Urgent Health Crisis
—Howard Gleckman

End of Life

End of Life Guidelines Series: A Compilation of Barbara Karnes Booklets
—Barbara Karnes

The End of Your Life Book Club
—Will Schwalbe

Being Mortal: Medicine and What Matters at the End
—Atul Gawande

Extreme Measures Finding A Better Path to the End of Life
—Jessica Zitter, M.D.

Grief

Permission to Mourn: A New Way to Do Grief
—Tom Zuba

The Grieving Brain: The Surprising Science of How We Learn from Love and Loss
—Mary Fraces O’Connor, Ph.D.

Believe: A Gift to Celebrate New Beginnings
—Dan Zada, Kobi Yamada

Collaborations

A safe and secure way to organize, discuss and share your health information with those who matter

Provides categorized lesson plans and instructional videos as well as the most recent news on dementia research. Families can watch old movies, listen to music and share games together on the app — making time together both educational as well as entertaining

An award for visual storytelling about Alzheimer’s and
dementia

​Since 1997, Second Wind Dreams has become involved in more than 1000 eldercare communities in 20 countries. Weaving thousands of dreams from the simple to the sublime, the mission of Second Wind Dreams is simple — to change the perception of aging through the fulfillment of dreams and the offering of innovative educational opportunities to caregivers and communities.